Carers

NSW Shadow Minister for Ageing and Disability Services talks about carers

Tuesday, May 25, 2010
Andrew Constance
NSW Shadow Minister for Ageing and Disability Services MP Andrew Constance
This morning I read Womans Day with a heavy heart. On a daily basis I meet people whose needs remain unmet and I see children not being given the opportunity to flourish.

As the NSW Shadow Minister for Ageing and Disability Services I am constantly appalled at the way people are let down by our support systems. The system is so under-resourced that it reacts to crisis rather than need.

We can and must do better. To break this cycle of neglect and reform government, we need to prioritise what is important to you. Policy that people want is not developed behind closed doors, politicians must listen and consult with people with disability and their families.‪

Send us your ideas on where you believe we can reform government, prioritise what is important to you.

On a state level we can change the way services are provided, we can ensure that people are given choice in the type of services they need at different stages of their lives, and provide a greater transparency. We can reduce the massive unmet need in the sector.

On a Federal level I support the work being undertaken by the Productivity Commission to examine a National Disability Entitlements Scheme, that will provide lifetime cover to those in need.

Australians should be mad as hell and I hope the broader community get behind the campaign to introduce such a scheme.

Do you want to help carers?

Take 30 seconds to sign the Mad as Hell pledge.

The pledge calls for people to vote in the next Federal and State elections, for the political party which publicly promises to transform Australia’s broken, inefficient, crisis-driven disability support system.

Are you a carer? Do you have a story to share with us?

Send in you contact details, story (no longer than 300 words) and photos to wd@womansday.com.au.

For more inspirational carers stories click here

User comments
While applying for a 2 year Disability Pension for myself, I undercovered foul play and sabotage. I suspected an arrangement between the Job Capacity Assessment company and the Disability Employment Service I was registered with. I obtained copies of my Job Capacity Assessments and found that the two done by the company in said arrangement, contained many lies and deliberate deceptions, and overrulings of my GP and Osteopath. Then they blame the doctor, claiming 'he said you weren't sick enough to qualify'. I tried to complain to Centrelink and requested a new JCA. They refused, and instead tried to crush me. They have sent me to the wall financially and broken up my family. The whole Centrelink system is filled with corruption and squandering of money. Then they claim we are the ones sending the country broke. What a joke and what a disgrace!
Not many people would be aware that the carer's pension is means tested like most other benefits, however as a carer I feel that we are the only ones that actually work for our pension. I left a job that I had been in for 18 years to care for my mother. I was working three days a week and I was earning $29,000 a year. Because we had saved a little bit of money and because my husband works I earn less than $100 per fortnight. Can you imagine how that makes a person feel. My mother suffers from Multiple Systems Atrophy, has been classifed as high dependancy and is totally dependant on care. I love my mother dearly and am very happy that I can care for her and that she doesn't need to go into a home but this has been financially devastating for my husband and I. We were at the stage where we didn't owe any money and we were saving for our retirement and putting money in our super but all that has gone by the wayside now. Carers should be paid for the job they do, not means tested.
I have a child who has Autism, she was assessed at the age of 5, and had no early intervention. My daughter is now 10 years old. Every step of the way we have had to fight for the help she needs. At the moment she requires urgent dental care, she has been assessed by a visit from the school dentist and requires urgent dental treatment. But due to the long blown out waiting list, she is required to wait at least another 18months for treatment, which quite frankly we think is disgusting. With dental care so out of reach financially it is very hard to get the treatment needed. We understand that our daughter is one of many children with special needs requiring urgent attention. But as usual children with special needs get overlooked. It is time for the government to sit up and take notice of the situation at hand and do something about it.
The government does not know the meaning of the word CARING be it paid income by an organisation or as a unpaid parent the support is not there. I worked as a carer for nine years and went into some homes these family members are beaten spat on and on call 24-7. They may if they are lucky have some time once aweek where they can go out and buy the house hold food and pay bills if they can afford to. But do they get sick pay, paid holidays, and supper not likely. This JOB they do is 24-7 there is no respite to being a parent at any time but the parents and partners of people with a disabiltiy is SEVEN days aweek how many of us work that long. How many of us would go running to the union if they are under paid. These people can not do this. GOVNERMENT stop talking and start doing for these families get out there and spend 48 hours with them and do it all. Most have to wear nappies and be hand fed lifted in and out of shower's. Changed and turned during the night.Can YOU do it.
I Have a son (9) with autism amongst other things, medicated and in a special needs class. He is a full-time job as he physically attacks me and the house but he is my life. I am his advocate for being included in this world and getting him the things he needs. Yet too often the gov chooses to turn a blind eye & pretend people with disabilities don't exist. Everyday is a fight to pay the bills, and buy the medication that allows my son to function enough to get his education. I am on the waiting list for respite as no one wants to take him as he is too active and out of control (the carers words) . Most days I want to stay in bed and just give up like the world has. I have spent more than I care to admit on medication for depression and I know on this I am not alone I also have a mum who is on a disability & I see her struggles and it breaks my heart...talk about forgotten people.... Come on politicians and see someone other than your own walle
I am a 70 year old pensioner and carer for my wife, a cancer victim, to help us get things we need, which sometimes can be rather expensive at times, I propose, that rather than increasing the pensions by a few misrable dollars a fornight, it would help us much more, to have a lump sum once a year, or even twice, scrimping and trying to save and even laybys are very hard the elderly and those on disability pensions, and their carers who must save the Government millions of dollars every year.
This hopefully will be just the beginning of a long campaign for carers who have been to my mind criminally neglected. Why should we be the only workers with no rights?? Speaking as a carer of 20 plus years , this job or rather the absolute lack of support etc so I can do my job has destroyed my health mentally and physically and forced me onto drugs to continue to cope and do my job. Kevin Rudd said full time is 40 hours a week , full time for so many carers is 168 hours a week. No housing , health care, disability services, retirement, Carers are expected to do it all with nothing. We don't need politicians to talk about it we need them to do something.( I continue to hassle politicians about carers issues) We the willing led by the uncaring are doing the impossible.

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